WELCOME TO CARDIAC SARCOIDOSIS & ME

Name: Cardiac Sarcoidosis & Me
Address: NZ

A real life story

ARE YOU NEW HERE?

The start

Day 1. On Monday, 30 May 2022 my heart went into a Ventricular Tachycardia rhythm which ended with me getting shocked from a...

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LATEST STORIES

Cardiac sarcoidosis changed my outlook on the medical profession

Day 1014. I had never had any major medical issues before this. When I used to go to a doctor and they would ask me if I had any...

Mar 15

Early menopause has arrived

Day 1004. Wow, it's been over a 1000 days since my life changing diagnosis of cardiac sarcoidosis. One constant has been an ongoing list...

Mar 3

Congratulations, you have vertebral sarcoidosis!

Day 961. In January I had a bone scan and a follow up appointment with the orthopedic surgeon about the lesion they found on my spine...

Feb 19

ABOUT ME

Why am I writing this blog?

My name is M. I am a mum and digital marketing professional living in New Zealand. I was diagnosed with cardiac sarcoidosis in July 2022. I really struggled to find information and stories from other patients. Most information on sarcoidosis online is from clinicians and for clinicians, or is about sarcoidosis of the lungs.
I created Cardiac Sarcoidosis & Me as a platform for sharing my experience and journey. I am by no means an expert, and am learning about sarcoidosis as a disease and cardiology while I go.
I hope my experience helps others going through the same thing.

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