WELCOME TO CARDIAC SARCOIDOSIS & ME

Name: Cardiac Sarcoidosis & Me
Address: NZ

A real life story

ARE YOU NEW HERE?

The start

Day 1. On Monday, 30 May 2022 my heart went into a Ventricular Tachycardia rhythm which ended with me getting shocked from a...

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LATEST STORIES

May 10

Celebrating the day I nearly died

Before we get into this blog, I need to put out a little disclaimer: I have been going through a difficult time recently. Especially...

Apr 26

What I now know about ICDs

I got my implantable cardioverter defibrillator (ICD) implanted in June 2022. That is now almost two years ago. That blows my mind a...

Apr 8

How has sarcoidosis impacted my family?

Day 679. It is coming up to my two-year anniversary of my first Ventricular Tachycardia (VT) event. This year as the anniversary creeps...

ABOUT ME

Why am I writing this blog?

My name is M. I am a mum and digital marketing professional living in New Zealand. I was diagnosed with cardiac sarcoidosis in July 2022. I really struggled to find information and stories from other patients. Most information on sarcoidosis online is from clinicians and for clinicians, or is about sarcoidosis of the lungs.
I created Cardiac Sarcoidosis & Me as a platform for sharing my experience and journey. I am by no means an expert, and am learning about sarcoidosis as a disease and cardiology while I go.
I hope my experience helps others going through the same thing.

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