top of page
Follow my journey
Search


Early menopause has arrived
Day 1004. Wow, it's been over a 1000 days since my life changing diagnosis of cardiac sarcoidosis. One constant has been an ongoing list...
-
Mar 32 min read
4 views
0 comments

Congratulations, you have vertebral sarcoidosis!
Day 961. In January I had a bone scan and a follow up appointment with the orthopedic surgeon about the lesion they found on my spine...
-
Feb 192 min read
13 views
0 comments

My sarcoidosis diagnosis
I waited very impatiently to hear back the results from the PET scan. The 3 working days came and went. The Internet research Time is a...
-
Jul 12, 20222 min read
11 views
0 comments

My ICD implantation recovery
Days 8 to 22. Mobility One of the biggest challenges in recovering from the Implantable Cardiac Defribilator (ICD) device implantation...
-
Jun 20, 20223 min read
15 views
0 comments


Going nuclear
Day 18. I was discharged from hospital after my ventricular tachycardia with a note that I would get booked in for an FDG-PET scan. This...
-
Jun 18, 20223 min read
8 views
0 comments

My first week in hospital
Days 2 to 6. The first night in the hospital I couldn’t sleep. Too much adrenaline from the ventricular tachycardia (VT) and the ultimate...
-
Jun 7, 20226 min read
14 views
0 comments


The start
Day 1. On Monday, 30 May 2022 my heart went into a Ventricular Tachycardia rhythm which ended with me getting shocked from a...
-
Jun 2, 20223 min read
67 views
0 comments
bottom of page