Day 986. It's been a while since I have given a proper update. I have had some family and work things to deal with and also had some...

Day 974. I have been a little quieter than usual at the end of last year. I had some family and professional things to work through. ...

Day 857. This week it was time for my Infliximab infusion. Sometimes that's also called a Remicade infusion. I have mine every 6 weeks,...

Day 840. Looking back, there were a few signs that something was wrong before I was diagnosed and before my first big heart event....

Day 835. When I got the call to schedule the MRI for my back I wasn't sure if I should cancel it. My back has been much better this year...

Day 828. Work has been quite busy and a bit stressful, to be honest. And I have been dealing with some personal things. I am sure that...

Day 791. Last year I had an abdominal scan ordered by the rheumatologist to check my liver. I ended up having two of these scans, as the...

At my request I was referred to a sarcoidosis specialist by my GP. The specialist happens to be a pulmonologist who typically focuses on...

Day 618 (retrospectively) I just realised that I never gave an update of my appointment with the cardiologist in February about what I...

Day 759. I have been having really vivid dreams ever since I started taking Amiodarone back in December 2022. It is so vivid that I have...

Day 726. What’s the word again? What do you call it when? What was I talking about again? What’s that person’s name again? I know brain...

I got my implantable cardioverter defibrillator (ICD) implanted in June 2022. That is now almost two years ago. That blows my mind a...

Day 652. I was sitting on our couch after getting home from work when it happened. Suddenly I had the feeling of a wave washing over me....

Day 641. Just when I get comfortable with my health and the rhythms of my condition, my heart decides to throw a wobbly. Yesterday...

Day 599. I have never officially been diagnosed with heart failure so far. This is even though my heart's pumping ability has been very...

Day 592. I have had a few medical appointments this week. This is on top of returning to work on Wednesday and solo-parenting my son...

I have had several ambulance trips since my cardiac sarcoidosis diagnosis. I have gone from a complete novice to a bit of a regular...

When I went to the emergency department (ED) for the first time, I had absolutely no clue what to expect. I got frustrated with certain...

Day 556. What a day. This morning started out with me decorating Christmas cookies, and ended with me in the emergency department....

Day 552. I have been on Amiodarone as an anti-arrhythmic medication since December 2022. It has helped keep my ventricular arrhythmias...