Day 529. Ever since I got diagnosed with sarcoidosis and started my treatment I have been waiting for a wave of colds and flus to get me...

I had left my home monitor device for my ICD in New Zealand. From previous experience I knew that if it couldn't connect to the Internet...

Days 422 to 428. I have been in South Africa for the last few weeks for my mum's funeral. To say it has been stressful is an...

Day 315. My latest PET scan showed the inflammation in my heart is back. I visited my rheumatologist today and he advised that we will be...

Day 198. Looking back at the last few months since my diagnosis, I have had a new arrhythmia event about once a month. This has been...

Days 91 to 180. The last 3 months were quite the roller coaster of side effects. After upping my Prednisone in month 4 I felt rubbish,...

Days 90 to 91. For my birthday, my heart decided to gift me the gift of a fast heart rhythm. From around 7 AM on Saturday 26 August my...

Days 1 to 90. In general I felt quite well in months 1 and 2 of the treatment of both my heart problems and my cardiac sarcoidosis. For...

Day 54. 22 July 2022. I met the rheumatologist for the first time the morning after my ICD shock in the hospital's cardiac ward....

Day 53. I had my first shock from my ICD on Thursday, 21 July 2022. I don’t remember feeling any differently that morning to any of the...

Day 51. After what felt like an eternity I finally met with the cardiologist at an out-patient clinic on Tuesday, 19 July 2022. Our...

Days 8 to 22. Mobility One of the biggest challenges in recovering from the Implantable Cardiac Defribilator (ICD) device implantation...