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Cardiac sarcoidosis changed my outlook on the medical profession
Day 1014. I had never had any major medical issues before this. When I used to go to a doctor and they would ask me if I had any...
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Mar 153 min read
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A successful week for referrals
Day 986. It's been a while since I have given a proper update. I have had some family and work things to deal with and also had some...
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Feb 92 min read
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Do I have heart failure?
Day 599. I have never officially been diagnosed with heart failure so far. This is even though my heart's pumping ability has been very...
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Jan 22, 20243 min read
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Not my usual cardiologist
I had left my home monitor device for my ICD in New Zealand. From previous experience I knew that if it couldn't connect to the Internet...
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Aug 11, 20232 min read
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Too much arrhythmia
Day 198. Looking back at the last few months since my diagnosis, I have had a new arrhythmia event about once a month. This has been...
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Dec 13, 20222 min read
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Going too fast
Days 90 to 91. For my birthday, my heart decided to gift me the gift of a fast heart rhythm. From around 7 AM on Saturday 26 August my...
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Aug 29, 20222 min read
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Shock shock shock
Day 53. I had my first shock from my ICD on Thursday, 21 July 2022. I don’t remember feeling any differently that morning to any of the...
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Jul 23, 20222 min read
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Meeting the cardiologist
Day 51. After what felt like an eternity I finally met with the cardiologist at an out-patient clinic on Tuesday, 19 July 2022. Our...
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Jul 22, 20222 min read
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My sarcoidosis diagnosis
I waited very impatiently to hear back the results from the PET scan. The 3 working days came and went. The Internet research Time is a...
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Jul 12, 20222 min read
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My ICD implantation recovery
Days 8 to 22. Mobility One of the biggest challenges in recovering from the Implantable Cardiac Defribilator (ICD) device implantation...
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Jun 20, 20223 min read
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My first week in hospital
Days 2 to 6. The first night in the hospital I couldn’t sleep. Too much adrenaline from the ventricular tachycardia (VT) and the ultimate...
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Jun 7, 20226 min read
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The start
Day 1. On Monday, 30 May 2022 my heart went into a Ventricular Tachycardia rhythm which ended with me getting shocked from a...
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Jun 2, 20223 min read
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