Day 857. This week it was time for my Infliximab infusion. Sometimes that's also called a Remicade infusion. I have mine every 6 weeks,...

Day 592. I have had a few medical appointments this week. This is on top of returning to work on Wednesday and solo-parenting my son...

Day 552. I have been on Amiodarone as an anti-arrhythmic medication since December 2022. It has helped keep my ventricular arrhythmias...

Day 529. Ever since I got diagnosed with sarcoidosis and started my treatment I have been waiting for a wave of colds and flus to get me...

Day 315. My latest PET scan showed the inflammation in my heart is back. I visited my rheumatologist today and he advised that we will be...

Days 91 to 180. The last 3 months were quite the roller coaster of side effects. After upping my Prednisone in month 4 I felt rubbish,...

Days 1 to 90. In general I felt quite well in months 1 and 2 of the treatment of both my heart problems and my cardiac sarcoidosis. For...

Day 54. 22 July 2022. I met the rheumatologist for the first time the morning after my ICD shock in the hospital's cardiac ward....