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Congratulations, you have vertebral sarcoidosis!
Day 961. In January I had a bone scan and a follow up appointment with the orthopedic surgeon about the lesion they found on my spine...
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Feb 192 min read
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Meeting with a sarcoidosis specialist for the first time
At my request I was referred to a sarcoidosis specialist by my GP. The specialist happens to be a pulmonologist who typically focuses on...
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Jul 25, 20243 min read
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My doctors are not listening
Day 757. Yesterday I went to see my GP to try and take control of some of my health concerns. Last time I visited her, I went through a...
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Jun 25, 20243 min read
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Lately I have had brain fog
Day 726. What’s the word again? What do you call it when? What was I talking about again? What’s that person’s name again? I know brain...
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May 25, 20241 min read
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How has sarcoidosis impacted my family?
Day 679. It is coming up to my two-year anniversary of my first Ventricular Tachycardia (VT) event. This year as the anniversary creeps...
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Apr 8, 20244 min read
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Medication side effects - months 1 to 3
Days 1 to 90. In general I felt quite well in months 1 and 2 of the treatment of both my heart problems and my cardiac sarcoidosis. For...
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Aug 19, 20223 min read
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Meeting the cardiologist
Day 51. After what felt like an eternity I finally met with the cardiologist at an out-patient clinic on Tuesday, 19 July 2022. Our...
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Jul 22, 20222 min read
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My sarcoidosis diagnosis
I waited very impatiently to hear back the results from the PET scan. The 3 working days came and went. The Internet research Time is a...
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Jul 12, 20222 min read
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Going nuclear
Day 18. I was discharged from hospital after my ventricular tachycardia with a note that I would get booked in for an FDG-PET scan. This...
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Jun 18, 20223 min read
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