About Cardiac Sarcoidosis
If you don't know what Sarcoidosis is or what Cardiac Sarcoidosis is, this page is a good place to start. I have linked to pages with content that I have found useful when getting started on learning about Cardiac Sarcoidosis.
SarcoidosisUK says
The heart can be affected by sarcoidosis in two ways. Firstly, sarcoidosis can occur in the heart muscle itself (cardiac sarcoidosis). Secondly, the heart may be indirectly affected as a result of sarcoidosis in the lungs (pulmonary hypertension). Both conditions can have serious consequences.
Cleveland Clinic says
Cardiac sarcoidosis is a rare disease in which your body’s immune response to inflammation makes scars. These harm your heart, causing abnormal heart rhythms. Scars can get in the way of heartbeat signals, keeping them from getting where they need to go. Most people need medication, but others need devices to keep their hearts beating normally.
Thoracic Society of Australia & New Zealand says
Cardiac sarcoidosis can affect any part of the heart and conduction system, with a predilection for the left ventricular wall
myocardium, followed by the interventricular septum and conducting system, although the pericardium and endocardium
may be involved (333).
Online communities
Shock Absorbers
A group for Kiwis with implantable defibrillators (ICDs) in their hearts and those that love/support them.
Stop Sarcoidosis
The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner.
SarcoidosisUK Cardiac Sarcoidosis Facebook Group
A place for cardiac sarcoidosis (CS) patients, and those with suspected CS, to meet and help support each other.
Cardiac Sarcoidosis
A place for cardiac sarcoidosis (CS) patients, and those with suspected CS, to meet and help support each other.