top of page

Speaking with the orthopaedic surgeon about the lesion

  • Oct 15, 2024
  • 2 min read

Day 844.



September is the month of birthdays if you have children. Lots of parties to go to. Lots of presents to buy. Lots of excitement in general.


This week was my son's birthday, and I baked a cake. A godzilla cake was attempted. I was pretty happy with my efforts. And I have a very happy six-year old customer.


A phone appointment with the orthopaedic surgeon


Also this week, was a phone appointment with the specialist who ordered the lumbar MRI for my back.


He said that I had a disk protruding at L5 or L6. And that that would have caused my back pain last year. He said if my back pain comes back, he can give me an injection.


Then we spoke about the lesion.


Since I am likely having an annual PET scan in October, the doctor would like to see me again after that for a follow up consultation.


I tried to raise that from my research the PET scan might not show if the lesion is sarcoidosis related. Only a bone scan or a MRI with contrast.


He reiterated that he will see me in 4 months, and finished the call.


A bit cross


To be honest, I was a bit upset. I kind of felt like he wasn't open to considering sarcoidosis as a cause. And he wasn't open to taking my thoughts into account.


I was really frustrated and had a good vent with the husband. And with a few friends.


I feel less upset now than I did. So that's a win.


I also researched sarcoidosis in the vertebrae of the spine, and it seems it is not that serious. If that's what it is. And if that is the only place it is and not in the spine itself.


Maybe I should be more worried about cancer. But with all the PET scans we get, I would be surprised if cancer has a chance to sneak in that quickly.


Rheumatologist says no


I did follow up with the rheumatologist on wherher I would have a follow up PET scan this year, and he let me know that while my symptoms were stable I wouldn't be.


So I am not sure what the next step is with my back, actually.

Comments


  • Facebook
  • Twitter
  • LinkedIn

©2022 by Cardiac Sarcoidosis & Me. 

bottom of page